Hope for Down Syndrome: Gracie’s Story Christina McEndarfer 00:12 Welcome to Helping Kids Be Kids the Little Light House Podcast, where our passion is to help parents of kids with special needs be competent caregivers. Our mission is to glorify God by improving the quality of life for children with special needs, their families, and …
By Mom, Karmen Haley My name is Karmen Haley, and I am so honored to get to share with you our journey with my handsome little man, Layton Oaks. He is five years old, and he is in his 4th year at LLH. Leading up to our pregnancy with Layton, we had had three miscarriages. So …
Seven years ago parents Jon and Katie Vandrell sat in the doctor’s office getting an ultrasound of what they believed to be their second perfectly healthy baby girl. At the end of the appointment, they left with a weight far heavier than a set of photos to display on the fridge: there was possible swelling in Lucy’s brain.
Throughout the years at the Little Light House, Kian has learned that his strength comes from the Lord. When Kian is having a tough day, we remind him to seek joy, to which he replies, “Whoo Hoo!” and starts singing “I’ve got that Joy, Joy, Joy, Joy…” Though blind, Kian never stops seeing more of the world, and we know that this is just the beginning of his incredible journey!
Being a first time mother at the age of 19, I felt scared, overwhelmed, and unsure about our future. All I knew in that moment is that I loved my beautiful baby girl and we would be all right.
Upon a diagnosis of Down syndrome, doctors typically tell you every additional thing that could happen to your child as a result of them having Down syndrome. They informed us that there is a 2 to 3 percent chance that children with Downs may develop leukemia. Luna was a part of that percentage and was diagnosed with cancer at age 3.